Here is a good article about Meniere’s disease. My mother was diagnosed with   Meniere’s and I know she suffered terribly with it at times. This is one disease that I hope I do not inherit.

Meniere’s Disease 101

Monday, October 19th 2009

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Perhaps it is a disease you have never heard of. Or perhaps it is one that you know far too well. Ménière’s Disease is a disease that affects the inner ear and vestibular system (balance). Named after French physician Prosper Ménière who first described the syndrome in 1861, this disease is more common then most are aware of.

According to the National Institute on Deafness and other Communication Disorders (NIDCD), based on recent research, it is estimated there are approximately 615,000 individuals with diagnosed Meniere’s disease in the United States and 45,500 newly diagnosed cases each year.

What Is Meniere’s Disease?

Our hearing and balance systems are housed within what is called the labyrinth which has two parts: membranous and bony. The membranous portion of the labyrinth is necessary for hearing and balance and is filled with a fluid called endolymph. The movement of endolymph within the labyrinth is what is responsible for sending signals to the brain about the body’s movement and balance.

Health professionals believe an increase in the endolymph fluid has the potential to cause the labrynth to swell or dialate. This condition is referred to as endolymphatic hydrops and may very well play a part in symptoms of Meniere’s disease.

Ménière’s experts believe endolymphatic hydrops may cause a rupture to occur in the membranous labyrinth and cause the endolymph fluid to mix with other inner ear fluids it is not supposed to mix with. This mixing of inner ear fluids is also thought to cause symptoms of Meniere’s disease.

So although experts feel they have an idea of what contributes to Meniere’s disease symptoms, they do not know exactly what causes the disease.

According to the NIDCD, ongoing research is investigating many possible causes such as environmental factors, such as noise pollution and viral infections, as well as biological factors.

Meniere’s Disease Symptoms

Persons who are diagnosed with Meniere’s typically experience classic symptoms which may include:

  • Vertigo, which is a spinning type of dizziness can lead to inability to stand, sweating and vomiting
  • tinnitus, also known as ringing in the ears or hissing
  • hearing loss, which often fluctuates
  • a feeling of fullness or pressure in the affected ear

These symptoms occur with little to no warning. A Meniere’s attack typically consists of ringing in the ears, vertigo and hearing loss. Most often the attack of these symptoms will last several hours. The level of severity and discomfort of the symptoms, and how often they occur varies individual to individual. There is no one predicting factor for often or severe a person will experience a Meniere’s attack.

Meniere’s Disease Diagnosed

The diagnosis of Meniere’s involves many different tests and can be a lengthy process if symptoms are not textbook.

Diagnosis will first begin with consulting a physician specializing in hearing and balance such as an otolaryngologist. After a medical history review and a physical exam, the physician will refer the patient for a full hearing evaluation by an audiologist and typically a magnetic resonance imaging (MRI).

Evaluating a potential hearing loss is an important factor in the Meniere’s diagnosis. There are various hearing tests which allow the audiologist and physician to characterize the hearing loss and persons with Meniere’s demonstrate common trends in their loss.

An audiologist may also perform and auditory brainstem response (ABR) test (electrical activity in the hearing nerve and brain stem) and electrocochleography (recording the electrical activity of the inner ear in response to sound) to assist in confirming the diagnosis.

Vestibular (balance) testing may also be performed if necessary.

Meniere’s Disease Treatment

Currently there is no cure for Meniere’s disease.

Now the good news. Meniere’s Disease symptoms can often be controlled once diagnosed. Let’s look at the symptoms and treatments you’d undergo.

The most successful way of controlling symptoms is by reducing the body’s retention of fluids through medication and/or changes in their diet. Examples of successful diet changes consist of low salt or salt free diets and no caffeine or alcohol.

For persons with more debilitating and severe Meniere’s symptoms there are various surgical treatments that can be performed; however, these treatments most often result in a total loss of hearing and are reserved for persons who have already lost most of their hearing.

In regards to treating the hearing loss caused by Meniere’s, digital hearing aids are often prescribed. Hearing loss from Meniere’s does often fluctuate or can be permanent. Digital hearing aids allow the audiologist to adjust the level of amplification based on changes that may occur from time to time.

Living with Meniere’s

The disease itself is no fun, but with ongoing research and medical treatments persons with Meniere’s are finding success in managing their symptoms. And one day there may even be cure as researchers continue to learn more.

If you are experiencing Meniere’s like symptoms, it does not necessarily mean you have Meniere’s Disease; however, your hearing should be evaluated to determine what may be causing your symptoms.

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October 29, 2009 · Posted in Hearing Loss  

HLAA Testifies Before Congress on Emergency Alerting Issues

Sunday, October 11th 2009
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“This is NOT a test: Will the Nation’s Emergency Alert System Deliver the President’s Message to the Public?” That was the topic of a 3 ½ hour hearing before the US House of Representative’s Committee on Transportation and Infrastructure, Subcommittee on Economic Development, Public Buildings, and Emergency Management. In addition to the testimony provided by Hearing Loss Association of America, the Subcommittee heard testimony from FEMA (Federal Emergency Management Agency), the Government Accountability Office, Maryland State Emergency Management Agency (MEMA), a Florida County Commissioner, National Council of La Raza, and Las Vegas PBS.

If an emergency happened tomorrow, do you know how you would get the information you need? Would it be accessible to you? If you live in a rural community that does not regularly caption the news, are you sure the emergency news that has been provided has captions or uses some other visual method (scrolling or crawling text, for example) to get the information to you? These are the kinds of questions we need to answer before an emergency.

Chairwoman Eleanor Holmes Norton and Ranking Member Mario Diaz-Balart had some hard hitting questions for FEMA. Others on the panel provided information to help the Committee ensure that information on emergencies gets out to everyone.

Still, in an emergency, we need to be sure that every one of us is prepared. It’s up to us to provide information to Congress and FEMA about what we need in an emergency. It’s also up to us to talk to local emergency responders, to join in CERT teams and to be actively involved with emergency planning to ensure that you are safe in an emergency.

View HLAA’s testimony.

You can read the testimony of all invited to testify or view the video of the hearing on transportation.house.gov (go to Hearings section) – but will not be available for long. Or click here for a temporary direct link (look on the right column for the list of testimonies). The Committee has a number of hearing s coming up, so plant to keep the video only for a few days; the written testimony should be available longer.

For those or you who are curious about House proceedings: open captioning is not provided all the time: HLAA requested the captions. Captioning was provided remotely, even though there is a court reporter in the room who is responsible for the official record. In fact, there are two official court reporters – each one working no more than an hour at a time. We were also told that if the court reporters go on the House floor, they need only work for 15 minutes at a time. Each reporter cleans up the text during their breaks so that it can be ready for the official record as soon as possible.

We also learned from staff that several people in the room told staff said the captioning was great and they would love to see that all the time. Isn’t’ that always the case?

http://www.healthyhearing.com/releases/42822-hlaa-testifies-before-congress

October 21, 2009 · Posted in Hearing Loss  

Washington Redskins Show Their Support for the Walk4Hearing

Friday, October 16th 2009
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The Hearing Loss Association of America is pleased to announce that the Washington Redskins is supporting the association’s Walk4Hearing program. Washington Redskins Reed Doughty (37), who has had a hearing loss since childhood, is the Honorary Chair for the Washington DC Walk4Hearing scheduled for Saturday, October 17, 2009. The Washington Redskins Charitable Foundation donated a Kick-off Kids ticket package.

To publicize the event, Doughty filmed a Public Service Announcement (PSA) which is being aired on the Comcast Sports network. The PSA may also be viewed on walk4hearing.org. To learn about Reed Doughty’s experience with hearing loss and playing pro football, read the article published in Hearing Loss Magazine. For more on his career visit the Washington Redskins website.

HLAA applauds the Washington Redskins support of the Walk4Hearing.

http://www.healthyhearing.com/releases/42999-washington-redskins-show-their

October 21, 2009 · Posted in Hearing Loss  

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